{"id":2874,"date":"2018-05-14T15:16:20","date_gmt":"2018-05-14T15:16:20","guid":{"rendered":"https:\/\/ehma.org\/?p=2874"},"modified":"2023-01-21T20:13:23","modified_gmt":"2023-01-21T20:13:23","slug":"multi-act-kicks-off-today-bringing-research-closer-patients-society","status":"publish","type":"post","link":"https:\/\/ehma.org\/multi-act-kicks-off-today-bringing-research-closer-patients-society\/","title":{"rendered":"MULTI-ACT &#8211; Bringing research closer to patients and society"},"content":{"rendered":"\r\n<div class=\"wp-block-spacer\" style=\"height: 50px;\" aria-hidden=\"true\">\u00a0<\/div>\r\n\r\n<p><a href=\"https:\/\/ehma.org\/wp-content\/uploads\/2018\/05\/Multi-Act_logo.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-4738 size-medium alignleft\" src=\"https:\/\/ehma.org\/wp-content\/uploads\/2018\/05\/Multi-Act_logo-300x96.jpg\" alt=\"\" width=\"300\" height=\"96\" \/><\/a><\/p>\r\n<p>The <strong>MULTI-ACT<\/strong> project aims to <strong>increase the impact of health research on people with brain diseases<\/strong>. It will create and implement a new model allowing for the effective cooperation of all relevant stakeholders and be applicable in defining the scope of health research and innovation as well as new metrics for the evaluation of its results.<\/p>\r\n<p>Higher life expectancy among Europeans has caused an increase in the number of patients with <strong>brain diseases, such as Alzheimer\u2019s, Parkinson\u2019s, Multiple Sclerosis<\/strong> and many other disorders. Brain ill-health currently <strong>affects 179 million individuals in Europe<\/strong> and will affect one in three Europeans during their lifetime. The five most prevalent brain diseases in Europe are anxiety disorders, migraine, mood disorders, addiction and dementia. It is therefore of utmost importance to develop a research model that produces results that have a real impact on the lives of these patients and their caregivers.<\/p>\r\n<p>\u201c<em>Scientific research is crucial in taming the effects of these diseases; the time has come to make the research more effective, inclusive and to take on board all the stakeholders involved<\/em>\u201d says Paola Zaratin, Director of the Italian MS Society Foundation and Coordinator of the MULTI-ACT project. \u201cBeginning with patients, their needs and experiences\u201d.\u00a0So far, most multi-stakeholder initiatives have faltered, in most cases due to the lack of appropriate infrastructure and shared means of aligning efforts and results. This is why the MULTI-ACT project will work with patient associations, academics, private stakeholders and the public to develop brand new tools to assess the value of research from four different aspects: stakeholder agenda, scientific excellence, economic efficiency and social impact.<\/p>\r\n<p>\u201c<em>An effective organizational structure, clear engagement tools and goals are key strategic elements for any successful multi-stakeholder initiative<\/em>\u201d adds Riccardo Giovannini, Partner of the EY\u2019s Italian Climate Change and Sustainability team that will support the design and implementation of the MULTI-ACT stakeholder engagement policies and initiatives. \u201c<em>This will be instrumental in forging a common research agenda and best practices to share with research institutions in the EU and beyond<\/em>,\u201d says Fr\u00e9d\u00e9ric Destrebecq, Executive Director of the European Brain Council (EBC), a MULTI-ACT project consortium partner.<\/p>\r\n<p>The MULTI-ACT project will last 3 years with a budget of \u20ac3.5 million. It brings together leading European society and patient organizations, research and higher education institutions, governmental organizations and technological organizations. MULTI-ACT will be coordinated by the Italian Multiple Sclerosis Society Foundation (FISM), as member of the International MS Federation (MSIF), a \u201cboundary organization\u201d between science and patients.<\/p>\r\n<p>For more information on the project, visit <a href=\"https:\/\/www.multiact.eu\" target=\"_blank\" rel=\"noopener noreferrer\">https:\/\/www.multiact.eu<\/a>. You can also follow MULTI-ACT on Twitter <a href=\"https:\/\/twitter.com\/MULTIACTProj?lang=en\">@MULTIACTProj<\/a>.<\/p>\r\n<hr \/>\r\n<p><a href=\"https:\/\/ehma.org\/wp-content\/uploads\/2016\/06\/H2020Social_.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-446 size-medium\" src=\"https:\/\/ehma.org\/wp-content\/uploads\/2016\/06\/H2020Social_-300x55.jpg\" alt=\"H2020Social_\" width=\"300\" height=\"55\" \/><\/a><br \/><em>This project has received funding from the European Union\u2019s Horizon 2020 Research and Innovation Programme under the Grant Agreement No. 787570.<br \/>This page and the publications contained herein only reflects the author\u2019s views. The European Union is not liable for any use that might be made of the information contained in this page and publications.<\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>The MULTI-ACT project aims to increase the impact of health research on people with brain diseases. It will create and implement a new model allowing for the effective cooperation of [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_bbp_topic_count":0,"_bbp_reply_count":0,"_bbp_total_topic_count":0,"_bbp_total_reply_count":0,"_bbp_voice_count":0,"_bbp_anonymous_reply_count":0,"_bbp_topic_count_hidden":0,"_bbp_reply_count_hidden":0,"_bbp_forum_subforum_count":0,"footnotes":""},"categories":[31],"tags":[],"class_list":["post-2874","post","type-post","status-publish","format-standard","hentry","category-news"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.0 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>MULTI-ACT - Bringing research closer to patients and society - EHMA<\/title>\n<meta name=\"description\" content=\"The EU-funded MULTI-ACT project (1 May 2018 \u2013 30 April 2021) aims to increase the impact of health research on people with brain diseases.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ehma.org\/multi-act-kicks-off-today-bringing-research-closer-patients-society\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"MULTI-ACT - Bringing research closer to patients and society - EHMA\" \/>\n<meta property=\"og:description\" content=\"The EU-funded MULTI-ACT project (1 May 2018 \u2013 30 April 2021) aims to increase the impact of health research on people with brain diseases.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/ehma.org\/multi-act-kicks-off-today-bringing-research-closer-patients-society\/\" \/>\n<meta property=\"og:site_name\" content=\"EHMA\" \/>\n<meta property=\"article:published_time\" content=\"2018-05-14T15:16:20+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2023-01-21T20:13:23+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/ehma.org\/wp-content\/uploads\/2018\/05\/Multi-Act_logo-300x96.jpg\" \/>\n<meta name=\"author\" content=\"EHMA Team\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"EHMA Team\" \/>\n\t<meta name=\"twitter:label2\" content=\"Estimated reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/ehma.org\/multi-act-kicks-off-today-bringing-research-closer-patients-society\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/ehma.org\/multi-act-kicks-off-today-bringing-research-closer-patients-society\/\"},\"author\":{\"name\":\"EHMA Team\",\"@id\":\"https:\/\/ehma.org\/#\/schema\/person\/1b31cfb5faf9ccc50b6d4653b45c3f5f\"},\"headline\":\"MULTI-ACT &#8211; 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